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Life Advocacy believes restoration of America’s culture of Life will be achieved only through a better informed electorate. The public’s supposed support for the anti-life agendas of readily available abortions, utilitarian medical experimentation and quality-of-life approaches to disability, stems largely from misperceptions about the radical nature both of the so-called “pro-choice,” biotech and right-to-die lobbies and of current laws on abortion and medical decision-making in America.

Average citizens are deceived because the anti-Life lobbies and their media accomplices have effectively clouded the true issues. Restoring justice and mercy to our nation’s laws requires a change of mind, along with a change of heart.

The most certain way to change minds is relentless truth telling through strategic rhetoric and appeal.

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Sen. Marco Rubio speaks on Life at Feb. 1, 2012, Susan B. Anthony List banquet

My Trisomy 18 son is not alive because of a miracle. He is alive because we chose life for him.

LifeSite News - February 2, 2012
Alex Hauber

February 2, 2012 (LifeSiteNews.com) - I am the proud father of a three year old son named Lane who was born with full Trisomy 18. Many within the medical community would say that boys with this condition - the same genetic condition that Rick Santorum’s daughter Bella has - never survive. Many would say that Lane’s life is a ‘miracle.’

The fact that Lane is alive is not a miracle. Lane is alive because my wife and I chose life for him. We made the decision to provide the same medical treatment for Lane as would be provided to another child without a discriminatory genetic label. Karen and Rick Santorum made the same decision for Bella.

From the time that the genetic conditions Trisomy 13 and Trisomy 18 were first identified in the 1960’s, it seems the children who receive these diagnoses have been abandoned by the medical system, likely due to the certainty that survivors had severe disability. A publication in the Lancet in 1992 stated, “A newborn infant with trisomy 18 should be considered as a patient with a hopeless outlook who ought not to be subjected to invasive procedures.(i)” Along the way, someone coined the phrase “incompatible with life” in reference to both Trisomy 13 and 18 and that seems to have stuck.

In 2003, the truth began to emerge. In a paper titled, “Lethal Language, Lethal Decisions(ii)” physicians who are leaders in pediatric ethics noted that medicine had evolved since the 1960’s and that treatment now existed for some of the conditions which many children with Trisomy 13 and 18 died from. They suggested that calling these conditions “lethal anomalies” is “not only inaccurate, it is also dangerous; by portraying a medical condition what is in fact a judgement about the child’s quality of life, it wrests from the parents a decision that only parents can make.”

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Alex Hauber is the president and founder of the Trisomy Advocacy Group whose mission is to advocate for the Trisomy community by empowering families and the medical community to make informed decisions regarding the care of Trisomy children.

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We acknowledge with thanks a generous gift from Hon. Joan B. Hall in memory of her late husband Frank Braden Hall.

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